My Pretties

Liam's back at McMaster, and we're waiting to hear how things went at Sick Kids. He had his heart echo and was studied for a sleeping disorder, so he won't have to go back at the end of the month. Mary visited yesterday with her mom and sister, and we're both going today, which I'm looking forward to because I haven't seen Liam in about a week.

My kids sure are beautiful. I'm sure most parents think that, but mine totally win. ;)

Zef

Zef

Zefram (edited by Mary)
(he likes to be cross-eyed sometimes, silly boy)

Liam & Zef visiting at McMaster

Liam sleeping, and look at those cheeks

Liam Visits Toronto

I just got home from work and Mary's sleeping, but there's a note saying Liam's going to Sick Kids in Toronto bright and early tomorrow for 1 or 2 nights, most likely to be studied in regards to his tet spells. Woohoo! Here's hoping they unravel the mystery keeping him away from home.

By the way, for those not familiar with Liam's condition, there's a little area on the side panel to the right which briefly explains it.

Next

Liam's doctor is attempting to have him admitted to the cardiac ward at Sick Kids in Toronto, in order for Liam to undergo a sleep study (his tet spells occur when he is in a deep sleep). Sick Kids has no respiratory beds available, but he may be able to get a cardiac bed due to having a heart echo scheduled at Sick Kids at the end of the month. While it would suck that Liam would be even further away, it may provide the answers we need to treat him and bring him home safely.

If Liam does come home requiring a monitor, we got the wonderful news today that such a monitor is not covered by the government. The price tag? $2,400. That's approximately $2,400 more than we have available. It's possible that he won't require a monitor (particularly if the sleep study gets a green light), and there's a slim chance that we may tap into funding to reduce the cost. If all else fails, it looks as though our extended family, once again, will help us take care of such a hefty financial burden.

We learned an interesting factoid today as well: Liam's nearly 11 weeks spent in the Neonatal Intensive Care Unit thus far would have a bill of around $150,000 if we weren't Canadian citizens. I'm feeling thankful we are. The cost to us: $0. Imagine if we lived south of the border (especially having seen Sicko). We'd be looking at bankruptcy or Zefram being an only child.

Liam's doing well otherwise. He's at 8 lbs 7 oz and eating like a champ. Nothing new with Zef... it still floors me every time he smiles (which he does often).

More news as it becomes available...

Cancelled

Just got off the phone with the Dr. at Mac and Liam ISN'T coming home. He had another spell and the Dr. isn't comfortable enough to send Liam home just yet. Please pray for patience as it is running out FAST.

Finally

While visiting Liam yesterday in the NICU we got the most amazing news. Out little Lee Lee gets to come home on Thursday. He hasn't had any tet spells for 6 days and when his O2 sats go down to the 60's he slowly bring his sats back up on his own with out the help of oxygen. So from Wednesday to Thursday Matt and I will be bunking in the care-by-parent room at the hospital in preparation for Liam to come home. He will do his car seat test (let's hope he passes that) and then on Thursday we will take him home. Then on July 30th Liam has his heart echo at Sick Kids in T.O., and then from there we will find out when he will have his heart surgery. So once that is all done and his heart is fixed we can put this all behind us and get on with our lives. But for now we are so happy that Liam is coming home and we just want to thank everyone for all your prayers and support. It's nice to know that there were so many people praying for Liam and our little family. God is good.

10 weeks

The boys will be 10 weeks tomorrow and it's crazy how fast they are growing up. Zefram isn't as cranky as he use to be but still more cranker then Liam and they are both smiling lots for daddy not mommy. (apparently I don't count) Liam is still in the NICU as they continue to figure out why his o2 sats continue to drop when he falls into a deep sleep. It's frustrating cause all we want is Liam to come home. Liam is up to 8lbs 2 oz and Zefram is close to 11lbs. So here are some new and beautiful pics of Liam.

Liam's goofy smile

Liam all content with a full belly

Grandma happy to see Liam again

Aunite Lar and Liam

A collage so you can see how big they are