Cancelled

Just got off the phone with the Dr. at Mac and Liam ISN'T coming home. He had another spell and the Dr. isn't comfortable enough to send Liam home just yet. Please pray for patience as it is running out FAST.

Finally

While visiting Liam yesterday in the NICU we got the most amazing news. Out little Lee Lee gets to come home on Thursday. He hasn't had any tet spells for 6 days and when his O2 sats go down to the 60's he slowly bring his sats back up on his own with out the help of oxygen. So from Wednesday to Thursday Matt and I will be bunking in the care-by-parent room at the hospital in preparation for Liam to come home. He will do his car seat test (let's hope he passes that) and then on Thursday we will take him home. Then on July 30th Liam has his heart echo at Sick Kids in T.O., and then from there we will find out when he will have his heart surgery. So once that is all done and his heart is fixed we can put this all behind us and get on with our lives. But for now we are so happy that Liam is coming home and we just want to thank everyone for all your prayers and support. It's nice to know that there were so many people praying for Liam and our little family. God is good.

10 weeks

The boys will be 10 weeks tomorrow and it's crazy how fast they are growing up. Zefram isn't as cranky as he use to be but still more cranker then Liam and they are both smiling lots for daddy not mommy. (apparently I don't count) Liam is still in the NICU as they continue to figure out why his o2 sats continue to drop when he falls into a deep sleep. It's frustrating cause all we want is Liam to come home. Liam is up to 8lbs 2 oz and Zefram is close to 11lbs. So here are some new and beautiful pics of Liam.

Liam's goofy smile

Liam all content with a full belly

Grandma happy to see Liam again

Aunite Lar and Liam

A collage so you can see how big they are

8½ Weeks

It's hard to believe that the boys are almost 2 months old. Glad it's moving along fast though! ;)

Liam's lung test came back negative... they're not the problem. His doctor's current theory is that it has to do with an immature brain, which I assume he got from his mom (ha!). We could be bunking with him in preparation for his release as early as Sunday, but that's assuming that he has no spells until that time. In other news, he's eating like a champ and seems to be growing nicely.

Today the boys visited with each other again, but this time it was Zefram who slept through it. Zefram is doing fine; he's a bit less fussy than he's been the last few weeks. And now, for your viewing pleasure...

Liam burping on mommy at the hospital

Our very first family picture with all 4 of us

Zefram telling his animals an exciting story

Yes, daddy needs a haircut and a shave

Zoiks!

Big Z having a nap

'Sup

7 Weeks

The boys are 7 weeks old today. I haven't updated in a while (sorry!), so I'll try and remember all the updates.

Liam may be coming home in 1-2 weeks. We've heard that before, but Liam's doctor has figured out that his spells, where his blood oxygen drops dangerously low, seem to not be related to his heart. Most likely, the problem is sleep apnea or a similar disorder. This is actually good news, as it means his heart isn't causing these spells; in fact, Liam's heart rate is excellent despite his Tetralogy of Fallot.

This past week, Liam and Zefram got to meet for the first time in about a month. Liam slept right through it, and Zef was too busy fussing to care, but it was still pretty cool. Liam has been awake for our last few visits, and so we've been able to see his eyes, again for the first time in about a month (he's always sleeping when we visit, and we don't want to wake him).

I just called the NICU, and Liam's weight is up to 7 lbs! I did a rough weighing of Zefram today, and he's around 10 lbs. Woohoo!

Zefram's still quite fussy, but things could definitely be worse. He's smiling more often, which is an incredible thrill. I'll upload a video of him shortly (and by shortly, I mean before his third birthday).

Liam

Zefram

Reunion at McMaster

Mommy and the boys

Zef being propped up

Zef and dad chilling out

Liam at the NICU

I went to go visit Liam today (this is Mary) with Zefram my mom and sister Marlene. He's doing well, but he had a really bad tet spell just before I came in which meant he need some oxygen and he couldn't be moved from the area where he is, which meant Zefram and Liam couldn't have "chit chat" time. It made me really sad since they haven't seen each other in 3.5 weeks, if not longer. So next time I'll just have to call a head of time to make sure Liam and Zefram can have some time together. But for now here are some pics of Liam. He's still cute as a button. Enjoy!

Liam

Auntie Lar, mommy, and Liam

In his prison (aka his bed at the NICU)

Cuddle time which I LOVE

Look at those lips

Grandma and Liam

his bed

Auntie Lar giving kisses

5+ Weeks

Yeah, so it's taken a lot longer to get an update in than I expected.

Liam's almost up to 6 lbs now; Zefram nearly 8 lbs. Liam is doing better little-by-little, and he's tolerating full feeds now; the bowel issue seems to be gone. We had a meeting with his doctors last week, and while they can't give us a date for when Liam can come home, they said he's making progress. The current goal is for his weight to increase as fast as it ought to, as weight is an important factor relating to when he can have surgery, and how risky it will be.

Zefram's being a bit of a handful lately, as he's been colicky for the past few days... very restless and cries seemingly at random. Hopefully we'll have more pictures of Liam soon, but for now, here's some of Zefram.